Are you looking for a brain cancer support group? These groups can be very effective in providing information and emotional support that are needed when dealing with the disease.
On the other hand, it’s also important to select the right support group. Here are some red flags to watch out for:
1. High-pressure sales
This could be for products or services. There’s nothing if the organization gives you the option to purchase those items. However, you should never feel that you’re being pressured to do that. There are several reasons but one of the most important ones is you’re there for the support group to get help and not to buy things.
2. Overly high fees
Some cancer support groups aren’t free and require you to pay fees. There’s nothing wrong with that per se. However, you should definitely watch out for fees that are exorbitant. What’s too high? Make sure to do some research about industry standards based on the services that the organization is offering. If it’s much higher than the average rates then take your business elsewhere.
3. Members who are disruptive
Watch out for disruptive members as they can have a negative effective on your experience.
4. Meetings that are basically gripe sessions
Nobody said that having cancer was easy or that you should be “happy” about having the disease. This isn’t to say that you should be dealing with anger and other emotions when you join a support group. However, if the sessions are only about complaining it’s not an effective way to deal with the situation.
The sessions’ leaders should be able to hold sessions that are all about finding better ways to cope with brain cancer. This can involve various methods. What’s important is to learn how to accept and deal with the situation in the most effective way. That shouldn’t include simply whining about your particular situation. That won’t help to deal with reality and find solutions.
5. Judgement about actions/decisions
This is something the support group shouldn’t be doing. The group should be about sharing information and giving support. It has no business making moral judgements about decisions you’re making such as which treatments you pick, or actions such as missing a meeting.
6. Promise to cure your disease
It’s possible for your cancer to be cured but nothing in life is 100%. You should be especially worried when a group providing emotional support promises to cure your condition. By definition, they’re not even supporting the brain tumours so it’s a question mark when such support groups claim their therapy will definitely cure your cancer.
7. Asked to stop all treatments
This is easily one of the biggest red flags. The group supports you and one of the worst steps you could take is to stop your meds or other treatments. It’s important for the support group to supplement the treatments you’re getting for treating the tumours. On the other hand, it should never replace those treatments because dealing with the psychological issues is totally different from treating the tumours.